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Wednesday, January 31, 2007

Autism

Heard this sad news from my mum over our teleconversation yesterday. My cousin sister 'PY' youngest son has been diagnosed as a autistic kid! Mum asked me if i could help to find some info or resources locally as PY is currently bringing her son to Singapore for theraphy every week. Yes, the theraphy in Singapore is very costly and time consuming of coz. Just imagine everyweek have to travel from Ipoh to Singapore to and fro.

Frankly speaking when i heard about Autism i never thought that this illness can be sooo serious. The more i surfed and read, the more i worried....and now i have a better understanding for this illness as well.

Web definition for Autism is brain disorder that begins in early childhood and persists throughout adulthood; affects three crucial areas of development: communication, social interaction, and creative or imaginative play. However, people with autism may have a wide range of intellectual ability, some can show extraordinary abilities in mathematical or mechanical skills, or in music, rote memory etc. Here are some URLs Autism NASM PR4A HMAutism in case anyone of you would like to know more. Personally i've called one of the Early intervention programme centre in PJ and asked for more details about Autism. Well, sad to know that there is no cure until this moment and its a life-long condition which will affects every aspect of a Autistic. Special threatment and theraphy are essential for the Autistic kids in order to help them to be independent cope with life and achieve their full potential throughout their jorney to adulthood. And for sure they require much of the parent attention and patience.

Well, actually i din really worried about the money need to be spent for the theraphy and threatment as my cousin sister financial background is quite strong. She is a successful businesswoman in beauty line and her hubby oso from 'not poor' family. Am more worried about the time & patience that PY really have to sacrify. In fact, a lot of relative and myself found her son kinda special from other kids since he is about 1yr++. Looking at he isolated himself each time our family gathering. He even din talk, play or interact with his elder brother who is only 1yr++ older than him (Didi is turning 3yrs old this March). My few uncles and aunties even prompt a question to PY shd bring her son to have thourough checkout as none of us had hear he talk to anyone b4. He even very reluctant to his parents and only stick to his kakak. This lead to his parents hardly to communicate with him and they oso hardly to bring him out and this left him always at home alone with his kakak. He can live without his parents for sure but not without his kakak. PY knows this too and tats the reason she treat the maid very well, very well until the maid kinda proud of herself and din really take her instruction seriously.

There was one time my aunty reached PY home looking at her maid 'cubitting' the son while feeding him, so my aunty told the maid not to do that, if he really dun wanna eat, dun force him lar. The next thing the maid did was bring the child into a room and locked themselve inside. She ignored my aunty no matter how many time she asked her to open the door. She and they boy only came out after the boy finished the meal. Another example, the maid will usually lock the boy alone inside a room while she is doing the housechore (only the boy and his kakak at home)! regardless if the kid shout, cry, pee or poo inside the room!!!! She will only goes to him when she finishes her housechore. Yea sounds ridiculous, but its really happened and my cousin sis din dare to scold the maid as well. Cos she and his son depend very much the maid Personally i feel sad each time i look at his younger son. I remember clearly i asked his Kor Kor b4 why never saw him play with his didi, and Korkor told me 'how to play w him, didi din bother me, i wanna tok & play w him, but he always dun wan! Am not say that its too late for PY to discover this, but definately can be indentified earlier as we relative only see her son once a while oso feel something is not right! What i can say?? Yea, she is very busy with her busineess and she has a big plan to expand her business as well. Heard my aunty, her mum always complains to my mum tat PY has no time for the kids as she put all her time and effort into her business.

I wrote this out not for gossiping! but truly heartbreak to see all this happened. I really wish my cousin sister and her hub can look into this seriously this time and pay more attn and time on their son. Its no longer a matter of whose fault or wrong but to find some ways on what we can do to help the boy! Anyway, i will meeting her up this CNY and pass her the info. that i gathered. If everyone out there has any useful info or resources for kids with autism, appreciate you can drop by and share with us.

6 comments:

shoppingmum said...

Sorry to hear about that. It's a long journey, but there're helps. Since he's from a richer family, I guess his parents are capable of giving him a better environment, as long as no one gives up, Autism kid can have a better chance in life too.

Sasha Tan said...

my nephew is autistic. and its pretty bad.You can ask them to check this website out http://www.thetole.com my newphew is undergoing acupunture treament and he is better.

MY Life Zone said...

Really sad to hear that.. kids are like gifts from God... cannot imagine why the kids been treated like this... pity him only. But luckly now yr cousin started to act on 'correcting' it.. ei.. hopefully the boy can recover soon.

Unknown said...

Sad to hear that, hopefully the boy can recover soon...

Pinky said...

You know, a couple of years back there was a great ho-ha about the MMR jab in the UK, one doctor said that it causes autism and it sent waves of panic among parents... and my son haven't had that jab yet.. I guess it isn't true , cos otherwise our Ministry of Health wouldn't approve it as part of the immunisation schedule.

Anyway, I have a friend who has an autistic 2 year old son. I think they sent him to Singapore's KKCH's Child Development Unit (KKCDU)and Autism Association of Singapore's (AAS) early intervention programm.

CutiePrincessMummy said...

shoppingmum : True!! no one shd gives up!

sasha : Ooo, Acupunture can helps? nvr know tat, thx for sharing yea!

MLZ & Lovely mummy : Yea, its sad, but din mean hopeless, like shoppin mum said Autistic still have a better chance in life mar..:)

Pinky : Hi, thx for dropping by and ur sharings too. Aiyoh, if really due to MMR jialat lor, all the babies here compulsory for that jab wor! hopes its only rumours!!